The World Spina Bifida and Hydrocephalus Day’s third edition kicks- off with the theme “Access to Healthcare for all”. It reminds the public and policy makers that Spina Bifida and Hydrocephalus are a reality and increases awareness to improve the lives of people living with these conditions while celebrating many achievements made by our enthusiastic worldwide community.
Persons with Spina Bifida and/or Hydrocephalus and their parents need healthcare and social services to coordinate and cooperate with each other, in order to deliver appropriate, timely, adequate and efficient treatment and support. Services provided at an affordable and accessible multidisciplinary clinic are the best way to treat, support, and follow up a person with Spina Bifida and/or Hydrocephalus.
Health is a fundamental human right indispensable for the exercise of other human rights. The highest attainable standard of health is conducive to living an active life in dignity.
There are many social determinants of health, such as general socioeconomic, cultural and environmental conditions, living and working conditions, social and community influences, individual lifestyle factors, and age, gender and hereditary factors. The realization of the right to health therefore requires a multidisciplinary approach, from childhood into adulthood, and access to affordable, adequate, and appropriate services is imperative.
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Dr.Liem Lie, Dr.Herman Bakker y el Dr. Jan Willem Van Capelle, urólogos pediátricos, han visto más de 250 niños durante sus horas de consulta y tendrá un total de 29 pacientes operados en el segundo proyecto urológico de este año.
Estos proyectos urológicos empezamos hace dos años, inicialmente con el objetivo de optimalizar la atención médica a los niños que nacen con espina bífida. Desde 2001 organizamos junto con IF, capacitación incontinencia para este grupo de niños para que puedan ir seco y limpio a la escuela.
Sin embargo, más allá de esto, deben ser revisados periódicamente por un urólogo pediátrico para mantener, vejiga y riñón sano. Por desgracia, en todo el sur del Perú no hay un trabajo urólogo pediátrico y que los problemas principales generados. Ahora no sólo hay espina bífida pacientes jóvenes que visitan los consultationhours de los urólogos, otros (de nacimiento) desviaciones urológicos como hipospadias, riñón hidronefrosis etc, y parece que hay un grupo muy grande de niños que viven con el problema de mojar la cama. Desde los medios de comunicación locales, hubo un considerable interés por el Dr. Jan Willem Van Capelle a entrevistarlo durante los espectáculos de desayuno en este subject.En resumen, tenemos un nuevo proyecto con “orina en la cama”
Dr.Liem Lie, Dr.Herman Bakker and Dr. Jan Willem van Capelle, pediatric urologists, have seen more than 250 children during their consultation hours and have a total of 29 patients operated in the second urological project of this year.
These urological projects we started two years ago, initially with the aim of optimalizing the medical care to the children born with spina bifida. Since 2001 we organize together with IF, incontinence training for this group of children so that they can go dry and clean to school.
However, beyond this, they should be regularly checked by an pediatric urologist to keep, bladder and kidney healthy. Unfortunately in the entire southern Peru there isn’t a pediatric urologist working and that generated major problems. Now there are not only spina bifida young patients visiting the consultationhours of the urologists, other urological (birth) deviations as hypospadias, hydronephrosis kidney etc. and there appears to be a very large group of children living with the problem of bedwetting. From the local media, there was considerable interest in Dr. Jan Willem van Capelle to interview him during the breakfast shows on this subject.And then came . In short, we have a new project with “Bedwetting”
Dr.Liem Lie, Dr.Herman Bakker en Dr.Jan Willem van Capelle hebben ruim 250 kinderen op hun spreekuur gezien en hebben totaal 29 patienten geopereerd, in het tweede urologisch project (22 sept.-17 okt.) van dit jaar.
Deze urologische projecten zijn wij twee jaar geleden gestart, in eerste instantie met als doel om de medische zorg aan de kinderen geboren met spina bifida te optimaliseren.
Al sinds 2001 organiseren wij i.s.m. IF (International Federation for Spina Bifida and Hydrocephalus)(zelf) catherisatietrainingen voor deze groep kinderen zodat zij droog en schoon naar oa. school kunnen.Echter buiten dit moeten zij ook urologisch regelmatig gecontroleerd worden om blaas en nieren gezond te houden, helaas is in het gehele Zuiden van Peru geen kinderuroloog werkzaam en dat genereerde grote problemen. Nu komen er niet alleen meer spina bifidapatientjes op de urologische spreekuren,ook andere urologische (geboorte)-afwijkingen zoals hypospadie,hydronefrosenier etc. en blijkt er een hele grote groep kinderen te bestaan met het probleem van bedplassen. Vanuit de locale media was er dan ook grote belangstelling om Dr.Jan Willem van Capelle te interviewen tijdens de ontbijtshows over dit onderwerp.En vervolgens kwam de stroom patientjes vanzelf opgang. Kortom we hebben er een nieuw project bij ‘Bed- en broekplassen’.
